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SMA Documentary: ‘A Thousand More’


This MediaStorm documentary is all about Philly Mayer. Philly is a bright and happy nine-year-old boy who was diagnosed with spinal muscular atrophy (SMA) as a toddler.

Learn all about the new exoskeleton designed to specifically give children who suffer from spinal muscular atrophy (SMA) a chance to stand and walk.

The Mayers realized something was wrong when Philly suddenly stopped walking in his baby walker just before his first birthday. A few weeks later, he refused to stand. After many tests, they learned that Philly had SMA, The Mayers were told their little boy would only live until he was seven, but at nine years old, he’s still going strong.

Here are nine notable people who have spinal muscular atrophy.

SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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One comment

  1. Pierre McGraw says:

    Cheers a suffered a head injury in a motor vehicle accident the day(1997/09/15)before leaving to Australia(I live in NB Cnd), it left me in a coma for 6 month!!!!
    I did end up going to Australia 2004/10/13 for a month in my wheelchair. I own my own condo and I’m a motivational speaker now…
    I wish you all the best and part of your strength comes from the ones around you. You’re going to meet people who laugh or stare just flash them a smile buddy ???

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