Top 5 Reads for Spinal Muscular Atrophy Patients and Caregivers


Spinal muscular atrophy (SMA) is a rare neuromuscular disorder that causes a loss of motor neurones and muscle, often causing premature death in patients. Being diagnosed, or being a parent of a child diagnosed with SMA can be daunting. Here’s a list of helpful and informative books for patients, parents and caregivers alike.

1. “Courage is Compulsory” by Tori Elliott, Sam Mildon and Laura Gould
This book shares the stories of real SMA patients. It’s an inspiring read for young people facing similar challenges and a source of comfort for family members of someone facing a short lifespan.

2. “Spinal Muscular Atrophy – Disease Mechanisms and Therapy” by Sumner, Paushkin & Ko
This comprehensive reference covers recent advances in SMA research as well as an overview of  disease mechanisms, pathology, standards of care, and therapeutic development. Written by experts on the disease, this book is a recommended read for both patients and caregivers who want to come to grips with the mechanisms of the disorder.

MORE: Seven support care areas that can help patients with SMA 

How useful was this post?

Click on a star to rate it!

Average rating 0 / 5. Vote count: 0

No votes so far! Be the first to rate this post.

As you found this post useful...

Follow us on social media!

We are sorry that this post was not useful for you!

Let us improve this post!

Tell us how we can improve this post?

Leave a Comment

Your email address will not be published. Required fields are marked *