‘Life and Atrophy’: A Documentary About a Young Boy’s Journey With Spinraza


Documentary filmmaker Gareth Burghes first heard of spinal muscular atrophy (SMA) through his father’s work as a geneticist. He soon became aware of ongoing clinical trials that were studying a breakthrough drug that might change the lives of those who have the disease. As a filmmaker, Burghes knew that he wanted to document this important discovery and as he shares on the Life and Atrophy website, meeting 5-year-old Miles and his family gave him the opportunity to do so.

MORE: Learn more about Spinraza in our new SMA News Today forums

Life and Atrophy follows Nikki and Tony McIntosh as they search for a treatment for their son Miles, who has SMA type 2. Miles is placed in a clinical trial for a new drug, Spinraza. Burghes’ documentary represents what can happen when researchers, pharmaceutical companies, and families all come together to seek solutions and shows the science behind getting to the first FDA-approved treatment for SMA.

If you would like to see the full documentary or set up a community screening, please contact Gareth via email at [email protected]

MORE: Getting started with the SMA News Today forums

SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

How useful was this post?

Click on a star to rate it!

Average rating 0 / 5. Vote count: 0

No votes so far! Be the first to rate this post.

As you found this post useful...

Follow us on social media!

We are sorry that this post was not useful for you!

Let us improve this post!

Tell us how we can improve this post?

Leave a Comment

Your email address will not be published. Required fields are marked *

Pin It on Pinterest

Share This