Grandfather’s Goal: Finding a Cure for SMA

In this WXYZ-TV Detroit video shared in May 2015, we catch up with Stephen Clark and his adorable granddaughter Scarlet who was diagnosed with type 2 spinal muscular atrophy when she was 10 months old.

Meet the Kingsley family and 6-year-old Brett who was diagnosed with spinal muscular atrophy (SMA) type 1 when he was just a baby.

Stephen talks to pediatric neurologist Dr. Harold Finkle about clinical trials that are currently underway and how long it might take before a possible cure is found.  In addition, we meet Jace who is a candidate for human trials to test a technique that someday might repair the faulty gene responsible for SMA.

Read how little Reagan’s stem cell treatment for SMA is bringing hope to her family.

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