Living With SMA in Junior High School

This film, directed by Jeremy Ryan Carr and shared in 2013, is about Bryce. Bryce was diagnosed with SMA at the age of 15 months and his parents, Kelly and Dan, were told it was unlikely that Bryce would live beyond his second birthday.

Watch the story of Philly, a nine-year-old boy living with spinal muscular atrophy. 

Bryce is now in middle school and this short documentary shows what it’s like to care for a child with spinal muscular atrophy and what it’s like to live with the condition. Sports-loving Bryce plays basketball and hockey in his wheelchair with his dad, but admits that he often feels frustrated at not being able to play sports with other kids his age. More than anything in the world, he would like a cure for SMA so that he can walk.

Charity helps SMA teen to play video games with his friends.

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