SMA Stories: Meeting Captain Jack

In this emotional video shared by Sazan Hendrix, a group of old college friends decide to pay a visit to a friend and her son Jack.

Find out how Bryce handles being a junior high school student with SMA.

Jack is 13 months old and has spinal muscular atrophy (SMA). His mom Kristen explains some of the treatment Jack needs on a daily basis and describes how her life has changed since becoming Jack’s sole caregiver. The group is hoping the video raises awareness for the disease, which despite being the number one genetic cause of death for babies and infants, many people have never heard of.

Sazan usually vlogs about beauty and traveling with her husband, Stevie, so this is a quite a change for her.

Explaining some of the simple facts about spinal muscular atrophy.

SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.