10 Inspiring SMA Stories
Follow AJ Brockman‘s story in this film shared in 2011. AJ is an award-winning digital artist from Palm Beach Gardens, Florida who has always loved art. Diagnosed with spinal muscular atrophy (SMA) in infancy, AJ has been wheelchair-bound since he was two years old.
In this MDA video meet Joe Akmakjian, a 24-year-old with SMA who lives his life to the fullest and is about to embark on his biggest test of independence yet. (Hint to his family: He’s moving out.)
“I’m definitely disabled, its part of my identity. But it’s not the first thing I think of, and it’s not the biggest component of my life.” — Joe Akmakjian
This ASCA video introduces Chris Leon from Verdugo Hills High. Diagnosed with spinal muscular atrophy (SMA) as a baby, Chris was not expected to live past two years old. However, he defied all odds and is now a 22-year-old student.
This film, directed by Jeremy Ryan Carr and shared in 2013, is about Bryce. Bryce was diagnosed with SMA at the age of 15 months and his parents, Kelly and Dan, were told it was unlikely that Bryce would live beyond his second birthday.
**Warning, video contains adult language.**
This SoulPancake film, shared in April 2013, follows Shane Burcaw, a 20-year-old student with spinal muscular atrophy (SMA) and his friends and family. The video shows why his optimism and lust for life makes him such an inspiration to everyone he meets.
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