Feeling angry is an inherent part of living with SMA

A few weeks ago, my co-workers and I had a candid discussion about the things that tick us off. I work with a large team of patient and caregiver columnists from this site’s parent company, and we share many similar experiences and mindsets. Our monthly community calls over Zoom…

As a Disabled Person, My Anger and Fear Are Holy

Sometimes it feels like I’m living two separate lives. I’m very intentional when it comes to social media. My Instagram account is a carefully curated feed of Reels, cat pictures, and pastel-colored infographics. This is my cottagecore life. I wear dresses, listen to classical music, and wish I…

Ella Gets Help From a Therapist

The house is full of chatter while our kids — Ava, 13, Henry, 11, and Ella, 10 — talk to each other and play video games. The doorbell rings as one of Henry’s friends arrives. Henry puts his shoes on and is out the door,…

Doctor finder promo