The clock ticked accusingly on the wall. A lab technician had been inspecting my arm for the better part of 10 minutes, all in search of a vein that would put out a nominal amount of blood. Normally, I trek all the way downtown for lab work. Because of…
A few weeks ago, when I was preparing for my eighth Spinraza injection, I had to indulge in an activity that many of us with SMA dread. We manage everything from pneumonia to travel fiascoes, but having to get blood drawn is…
I have a reputation in my group of friends for not knowing any music. It’s gotten to the point where my friends have started making playlists of music that I missed out on in high school, such as Rihanna and The Black Eyed Peas. Sometimes when I’m on…
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