My husband, Randy, and I moved our family to the North Carolina mountains in the final hours of 1995. Adventures in our old farmhouse commenced immediately. We considered a newsworthy blizzard and the escape of two flying squirrels from the wall into the dining room ample excitement for a long…

I learned my vision needed assistance in fifth grade. Although I unwittingly squinted at the chalkboard, my report cards never indicated a problem. I was a model student because I adored my teacher, Mrs. Chandler. I didn’t want to disappoint my teacher parents, either. They never needed to prod me…

I’ve often said that it’s probably a good thing we don’t have a crystal ball. While sometimes it might be beneficial to know what lies ahead, if I could choose a magical power, I’d opt for a wiggly nose like Samantha on “Bewitched.” That said, I can think of plenty…

While living with spinal muscular atrophy (SMA), losing physical abilities is expected due to the progressive nature of the disease. Yet, even though I’ve been accustomed to this grim prognosis, sometimes I’m caught off guard. Although I know my muscles inevitably weaken and my abilities diminish over time,…

In the SMA community, we expect to grieve the loss of our abilities, given the nature of this disease. But for me, grief often feels like an ambush. In my three decades of life, I’ve lost many abilities. And every ability lost comes with its own grieving period.

Unlike most days when I draft my column, I had this one all figured out. Recent brain sparks of potential topics provided me with such confidence. I plopped down at the computer earlier than usual on Sunday to tend to a few odds and ends before getting down to the…

Hello, March! Here in the North Carolina mountains, daffodils optimistically poke through the ground; impatient ones bloomed last week. Trees are budding, and flower beds are sporting a bit of green. Forager bees are gathering pollen for the baby bees. With all this popping up and out, you’d think winter…

The HBO series “The Last of Us” takes place in a dystopian world where zombie-like creatures roam the Earth 20 years after a mass infection wreaked havoc on humanity. Its main characters, Joel (Pedro Pascal) and Ellie (Bella Ramsey), travel across a post-apocalyptic America in an attempt to…

Sobbing a blubbery and snotty cry while waiting for an elevator was likely my rock-bottom moment in January. I’d just left the interventional radiology department after another stressful procedure at the hospital. Thankfully, it went as easily as it could have, given the difficult situation. But something…

Our baby Jeffrey snagged his wings in early November 1997, ending the brief active-duty portion of our SMA assignment. A few short months later, my husband, Randy, and I opened a bakery and sandwich shop in one of our county’s tourist hot spots. The business bustled with out-of-towners and locals.