Every 28 days or so, I convince myself that I’m dying. If you’ve read my column before, you’ll know that I have a complicated relationship with death, which is to say I see it everywhere. Years ago, when I first started writing for SMA News Today, I thought I had…
The Wolf Finally Frees Itself
— Brianna Albers
Brianna Albers (she/her) is a crip-cyborg storyteller living in Minneapolis-St. Paul. She was diagnosed with spinal muscular atrophy type 2 in 1996 and lives with co-occurring physical and mental health conditions. By day she works as an advocate, bridging disability and mental health awareness to empower people to live their best lives; by night, she dabbles in imagination, and is currently writing “An Angel in the Garden,” an adult space fantasy with #OwnVoices disability representation. Find her online at briannahopealbers.com and on social media @briehalbers.
Featured Post
When I returned from the annual Cure SMA conference this summer, I knew something needed to change. I made a list of everything I’d been putting off, like finding a new therapist and setting up the photo shoot I’d been dreaming of for over a year. Then, in a…
I never think about my life after 7 p.m. Years ago, I stumbled across this particularly helpful life tip. As someone with anxiety, I have a hard time shutting up my brain, especially after the sun sets. Depending on my mood, I can easily get wrapped up in worst-case…
Last January, I wrote about shoes. At the time, I was gearing up to get a new wheelchair. Those who are familiar with wheelchairs will recognize this process for what it is: absolute agony. From seating to driving to minuscule issues that you can’t pinpoint for the life of…
In 2019, something wonderful happened. I got bit by the tattoo bug. If you’ve followed my column for a while, you’ll know my first tattoo was a big deal. First, it was finding an artist I vibed with. Then it was finding an accessible parlor — no mean…
As I write this, my room glows in the midafternoon sun. Sometime last year, I invested in a suncatcher, so there are rainbows everywhere — pastel sunbursts that are there, then gone. It’s unseasonably warm in Minnesota today, so the snow is melting, dripping steadily off the roof. According to…
“One thing’s for sure,” I tell my dad. “This is going to make a great column.” I’d been dreading this doctor’s appointment for days, and not just because of the hell that is commuting during the winter. The last time I was at this clinic, a neurologist questioned whether I…
When it comes to rituals, I am religious. Weekly rituals are the shortest, and consist largely of short-term planning. Monthly and quarterly rituals, on the other hand, are more reflective. Instead of updating my calendar and to-do list, I journal about my values. I revisit the goals I set…
Every Wednesday, I jump on a Zoom call with a bunch of writers and talk. Sometimes we talk about professional things, like revisions, copy edits, or writing to the market. Sometimes we talk about politics. More often than not, we talk about survival — specifically, how to survive as a…
In terms of “things I was expecting,” my mom coming down with COVID-19 was not one of them. The Albers family is notorious for doing too much at once. One of my caregivers often jokes that we’re the busiest people she knows. If we’re not renovating something, there’s a good…
It’s strange to think that a little over two years ago, I witnessed — and participated in — the conception of SMA My Way, a patient-focused community sponsored by the biotech company Genentech to support all of those affected by SMA. A lot has changed since then. I graduated…
My local clinic isn’t actually local. Boasting neighbors like IKEA and the Midwest tourist trap that is the Mall of America, my clinic is a 20-minute drive — one way. I could take the moderately more scenic route if I didn’t have a penchant for running late, but I…
The insecurity hits when I least expect it. I knew it would take me a while to adjust to post-grad life. I spent 20 years in school, eight of which were online. I didn’t have the social life people associate with college students living on campus. My life consisted of…
Explore More Columns
Discussion
Discussion
Discussion