How rare is SMA?
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SMA Overview
According to the National Institutes of Health, spinal muscular atrophy (SMA) affects approximately one of every 8,000 to 10,000 live births, and the SMA Foundation estimates that around 10,000 to 25,000 children and adults in the U.S. have the disease. Because it affects fewer than 200,000 people in the country, SMA is considered a rare disease.