How rare is SMA?
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SMA Overview
According to the National Organization for Rare Disorders, spinal muscular atrophy (SMA) affects approximately 1 of every 10,000 live births, and the SMA Foundation estimates that about 10,000-25,000 children and adults in the U.S. have the disease. Because it affects fewer than 200,000 people in the country, SMA is considered a rare disease.