Caring for someone with spinal muscular atrophy will present many challenges along the way. As your child grows, these challenges will change and you will need to be flexible and adaptable. We’ve compiled a list of some general tips to help you with some of the milestones your child will face based on information from Cure SMA.
There may be some initial challenges when your child first starts school, but these can be overcome with a little forethought. You may find it useful to talk to your child’s class about SMA and why your child needs a wheelchair. Explaining that your child can learn, laugh and make friends just like everyone else will help everyone quickly accept their new classmate.