In this video from SOSAVY, 17-year-old Melanie Tran talks about what it’s like living with type 2 spinal muscular atrophy (SMA). Melanie explains that she’s currently taking on the Australian Duke of Edinburgh award, which is a scheme for teens and young adults to work towards goals and achieve them.
To achieve a Duke of Edinburgh award, participants need to complete four separate disciplines: skills, sport, volunteering and an adventurous journey. For the sport section, Melanie has decided to learn 10-pin bowling. The Muscular Dystrophy New South Wales society has been instrumental in helping Melanie in achieving this and offers young people like Melanie with practical solutions for everyday living so that patients can “reach beyond their limits.”
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