In this video from Muscular Dystrophy UK, patients, caregivers and medical professionals talk about some of the best practices that should be adopted when it comes to the treatment and management of muscle-wasting diseases such as muscular dystrophy and spinal muscular atrophy (SMA). They explain how many different departments need to work together to offer a care package for patients and their caregivers.
The approach to care is multi-centered and requires professionals from genetics, nutritionists, nurses, doctors, physical therapists, occupational therapists and support groups to come together to offer families the best care possible.
In addition, participating in research and clinical trials is important to help advance treatments in this field and to work towards finding cures for neuromuscular diseases.
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