Taking your baby out in their stroller will be an enjoyable experience if they can see both you and the world around them. You will need a specialized buggy where the baby can lay flat but is also strong enough to support a suction machine and oxygen tank. Your baby can either lay flat or on their side with their backs supported by a rolled up blanket or foam wedges. Some babies may be able to sit supported upright in a buggy.
Most babies with SMA will need a car bed or harness to be used across the back seat, as opposed to a regular baby car seat, so they can be transported while laying flat. Some babies may be able to use a normal rear-facing car seat that reclines.
Bath times can be great fun and the warm water allows babies with SMA to move a little more freely which is great for exercising their joints. Invest in a bath support that allows you to have your hands free for washing and playing with your child. Some babies may get upset at bath times. If that’s the case, feed the baby after the bath as a full stomach may contribute towards being uncomfortable. If they’re fussy, try to keep bathtime as brief as possible.
You may want to have the infant in the same bedroom as you so that you can easily check on them throughout the night. The room needs to be at an ambient temperature and a humidifier may help to create a better environment. If your child coughs a lot at night you may need to open a window to provide more air circulation, but make sure the baby isn’t in a draft.
Have a few different sheets and mattress protectors as these will get damp quickly and need changing daily. Memory foam mattresses may provide more comfort than regular mattresses.
SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.