If you or a family member have recently been diagnosed with spinal muscular atrophy (SMA), one of the first things you’ll do is try to gather as much information about the disease as you can. The Internet is a great place to start, but it’s also vast and complicated — where do you even begin?
If you’re living in the U.K., the Spinal Muscular Atrophy Support UK has informational route maps that you can follow. You can pick from SMA type 1, 2, 3, 4, and SMARD to quickly access key details related to each type. Every route map has subheadings for every aspect of living with SMA from education to how the NHS can help to which healthcare professionals you may need to see.
The useful site has all the information you are likely to need to begin your journey with SMA. They also serve as a great reference point for new research and treatment options as they become available.
SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.