My father once made a promise to me as a little girl. I had been in the hospital’s intensive care unit for yet another respiratory infection, and he wanted ... Read more
I’d like to preface this piece by giving a shout out to one of our very own columnists, Brianna Albers. Brianna shared her experience with Amtrak on SMA News ... Read more
I’m going to state the obvious: The list of things this disease prevents me from doing is a long one. So, when I have to rely on others, patience has ... Read more
On this day five years ago, I graduated from college. I realize I’m only 27, but writing that makes me feel a little extra old. I could’ve sworn it ... Read more
I’ve used this space to share little snippets about the nonprofit organization I founded 18 years ago. I’ve shared who was my inspiration behind this foundation and how it ... Read more
The other day I found myself daydreaming on the way home from yet another hospital appointment. The monotony of the ride was all too familiar to me. This ... Read more
Although Mother Nature seems to have other plans lately, the days crossed off our calendars have us inching closer and closer to summer. Ah, yes, summertime, when the weather ... Read more
On April 10, social media exploded with pictures and posts pinned with #NationalSiblingsDay. Using it, people shared sweet or comical words about their siblings and what they mean to ... Read more
While taking care of ourselves physically is always the number one priority, it is also mindful to nurture our emotional well-being in the same regard. Living with SMA means ... Read more
If you’re anything like me, then you are just as excited about the turn of the season that happened a few days ago. It is officially spring, here in ... Read more
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