On Turning 25
I turn 25 in a few days, which for me is a pretty substantial accomplishment. After…
Articles by Kevin Schaefer
Lessons from My Former Editor
At the time of writing this, it’s been one week since the company I work for…
Pity and Empathy: There Is a Difference
A few months ago at church, an usher came up to me and made a gesture that was…
Hey, Hollywood, Let Netflix’s ‘The Dragon Prince’ Inspire How You Portray Disability
Dragons, elves, magic, and a deaf female general are just a few of the things you’ll…
Why I’m Grateful for My ‘Normal’ Education
“Normal” isn’t exactly a word that describes anyone with SMA. We do things differently than most…
My Bouts with Diarrhea Are a Time of Great Loathing
Yep, I’m going there. If you’re easily turned off by poop jokes, just skip this column.
The Woes of Equipment Malfunctions
In most superhero comics, movies, and TV shows, there’s usually an arc at some point in which…
On Finding the Right Healthcare Team
As a lifelong SMA patient, the sheer number of people on my healthcare team rivals the…
How Theater Helped Shape Me
Given how much I loved movies, playing make-believe, and any kind of storytelling, it’s no surprise…
SMA Awareness Month: Why Having SMA Is Both a Curse and a Blessing
In the closing scene of the 2002 “Spider-Man” movie starring Tobey Maguire, a solemn Peter…