Kevin Schaefer,  —

Kevin Schaefer (he/him) is a writer, podcaster, and lover of all things pop culture. Diagnosed with SMA type 2 at the age of 18 months in 1995, he shares a vast array of hilarious and eye-opening stories from his life with a neuromuscular disability. He works as the associate director of community content for this site’s parent company, BioNews. He also hosts the SMA News Today Podcast. Kevin is a graduate of North Carolina State University and lives with his parents in Cary, NC. People regularly mistake him for Tony Stark, on account of his intellect and advanced technological equipment.

Articles by Kevin Schaefer

Therapy Developments, Gratitude, and Patience

A few days ago, I met with an occupational therapist to evaluate the effects of my Spinraza (nusinersen) treatments. So far, I have had six injections of this therapy, and I have noticed things like increased energy and flexibility in my muscles. Still, I don’t…

Relying On My Parents More During the Holidays

The holidays are when I spend time with family and friends, put off Christmas shopping until the last minute, and relentlessly make fun of Hallmark movies. While it’s true that Hallmark flicks aren’t as remarkably terrible and cultlike as 1978’s “The Star Wars Holiday Special” (…

The Most Helpful Technologies I Use

Between smartphones, artificial intelligence, and social media platforms that allow people to post cat memes and political ramblings, it often feels like we live in a never-ending episode of “Star Trek.” Things that were once science fiction are now components of our everyday reality.

On Being ‘Cool’ When You’re in a Wheelchair

On Halloween this year, I dressed as the Marvel Comics superhero Daredevil. Blind lawyer Matt Murdock by day, and superhuman vigilante by night, Daredevil strikes fear into the hearts of his enemies as the guardian of Hell’s Kitchen. He is one of the most iconic…

SMA Creates Unconventional Sibling Relationships

As a kid, I was notorious for dropping my cherished action figures on the floor. Instinctively, I would turn to my older brother Brian to pick them up for me. A little irritated that I had interrupted his marathon viewing of SportsCenter and “Cops,” he had…

On Turning 25

I turn 25 in a few days, which for me is a pretty substantial accomplishment. After four broken legs, two major surgeries, multiple run-ins with pneumonia, a couple of pills shoved up my butt, and far too many catheters, I’ve managed to carry on. I figure…

Lessons from My Former Editor

At the time of writing this, it’s been one week since the company I work for lost one of its true titans. On Sept. 26, our senior managing columns editor, Serena Lawrence, passed away. Beyond being one of the best editors I’ve ever had the pleasure…