People with Disabilities Want to Work
App.com recently ran a story about a college student with SMA at Georgetown University. Anna…
Articles by Kevin Schaefer
Looking Back and Looking Forward
This week, my Facebook news feed was filled with graduation pics, friends posting sentimental messages about…
My First Spinraza Maintenance Dose
After my first injection of Spinraza (nusinersen) last November, I posted on Facebook to tell all…
It’s the Little Things
As I’m writing this, my butt is pretty freaking sore. No, I didn’t go bungee-jumping this…
Sorry to Inform This Twitter User, but People in Wheelchairs Have Lives
Twitter is an interesting place. On one hand, it provides a platform for me to share…
Adventures in the Big Apple (Part 2)
Last week, I wrote mostly about my trip to New York City, and how my…
Adventures in the Big Apple (Part 1)
Before I go any further with this column, let me go ahead and get this out…
How Having SMA Friends Has Helped Me
Growing up, I only had a handful of friends with SMA. As a result of my desire to…
Good Friends and New Adventures
Last week, I wrote about how living with SMA requires me to be proactive. When I want…
Independence Means Proactive Living
Over the years, I’ve talked with many SMA individuals and people with other disabilities who crave more independence…