As Halloween approaches and everyone crams to put together last-minute costumes, SMA parents may be wondering how they can get their kids involved. Traditional store-bought costumes are often difficult for SMA children to wear, as they’re either too tight or quite uncomfortable. However, one company wants to make sure…
SMA News Today is proud to present the first episode of our new podcast. This is a monthly podcast in which Community Editor Kevin Schaefer will interview a variety of individuals who have SMA. In this episode, Christine Getman shares her story and discusses her work with the nonprofit…
A couple weeks ago I was out with some friends from college for a trivia night at a local brewery. My friend Russ gave me a ride, and as we approached our destination the clouds covered the sky, culminating in a stormy display like something out of…
Jonathan Greeson is an SMA author, financial advisor and the founder of the North Carolina Electric Wheelchair Hockey Association (N.C.E.W.H.A.). After graduating from North Carolina State University with a degree in business administration, Greeson spent years working to become a financial advisor. During this time, he also founded the N.C.E.W.H.A.
While there are many different types of adaptive equipment that can help people with spinal muscular atrophy (SMA) and other forms of muscular dystrophy, one in particular is designed for people with limited upper body mobility. Developed and manufactured by Kinova, the JACO Robotic Arm is specifically designed for…
In a few days I’ll be 24, and every year my birthday is accompanied with at least some sentimentality. I hate being sappy, and anytime I reach a milestone it’s usually followed by an emotional speech by one of my parents. At my college graduation party last…
Kevan Chandler always dreamed of going to Europe, but knew that he’d have to develop a creative solution in order to make his dream a reality. Chandler has SMA type 2, and while he knew that traveling abroad in his wheelchair would present numerous obstacles, he came up with an…
Physical therapy is one of the most effective ways to help SMA individuals as their muscles deteriorate over time. Yet while it can be extremely difficult for a person who has SMA to do any kind of physical exercise on land, water therapy is an even better alternative. According to…
I’ve been writing this column since April, and while I haven’t shied away from addressing personal topics like adapting to my weakening body and at times feeling burdensome, dating is a subject I’ve steered away from. When I was on a panel at the Cure SMA…
Just as it’s possible for SMA individuals to go to public and private school when they’re growing up, a post-secondary education is also perfectly feasible. Yet just like any aspect of life with SMA, there are plenty of obstacles to overcome when it comes to going to college. If you…
Get regular updates to your inbox.
