Simple Facts About Spinal Muscular Atrophy
In this short animated video from Julia Brownholtz shared in January 2015, we find out some basic information…
Articles by Wendy Henderson
Explaining the Use of Elemental Diets for Infants With Type 1 SMA
In this FightSMA video shared in July 2011, Pediatric Clinical Nutritionist Erin Seffrood explains the Elemental Diet, including what…
Explaining the Role of SMN Genes in Spinal Muscular Atrophy
https://www.youtube.com/watch?v=Fp7MQlZGpKI In this educational video from Roche shared in August 2014, find out more about motor neurons and what…
Exploring SMA and Relationships
In this PBS Newshour video, psychologist Danielle Sheypuk challenges the concept of disability, in particular, that if you’re…
Owen Kent Represents the SMA Community With ‘Angels of Mercy’ Film
https://vimeo.com/188361619 Owen Kent is the first person with spinal muscular atrophy (SMA) to write, produce and star in his…
Understanding the Progression of Spinal Muscular Atrophy
In this video from the DNA Learning Center shared in July 2012, Dr. Darryl De Vivo from the…
Families Coping With Spinal Muscular Atrophy
In this video from Portland Press Herald shared in March 2015, we meet two families who have been…
Duchenne MD Drug Could Be Effective in Fighting SMA
https://www.youtube.com/watch?v=56YMP4-NFVw In this video from Wochit News, we find out a little information about a drug which has shown…
Cheerleading With SMA: Brittany’s Story
This video, from Spy Hop Productions shared in 2011, is all about Brittany Crockett, a 16-year-old high school…
Muscle Owl Talks About SMA Research in AVXS-101
In this podcast episode of Muscle Owl Talks from Muscle Owl, host Peter Duffy chats with his co-host Michaela,…