Wendy Henderson,  —

Wendy is a proven blogger and social media manager who has helped to build online communities for businesses and organizations. She currently heads the website’s social outreach online through social media platforms such as Facebook, Twitter, and Pinterest.

Articles by Wendy Henderson

Simple Facts About Spinal Muscular Atrophy

In this short animated video from Julia Brownholtz shared in January 2015, we find out some basic information about spinal muscular atrophy (SMA), a rare genetic disease which affects around one in 10,000 babies and the number one fatal disease for infants. Read about five experimental therapies…

Explaining the Role of SMN Genes in Spinal Muscular Atrophy

https://www.youtube.com/watch?v=Fp7MQlZGpKI In this educational video from Roche shared in August 2014, find out more about motor neurons and what happens to the motor neurons in children who have spinal muscular atrophy (SMA). Scientists measure major development milestones in spinal muscular atrophy. Find out more. The film talks about the…

Exploring SMA and Relationships

In this PBS Newshour video, psychologist Danielle Sheypuk challenges the concept of disability, in particular, that if you’re disabled you can’t possibly be sexy. Learn about Jimmy’s story of life and love with SMA. Sheypuk has type 2 spinal muscular atrophy (SMA) but doesn’t let…

Families Coping With Spinal Muscular Atrophy

In this video from Portland Press Herald shared in March 2015, we meet two families who have been touched by spinal muscular atrophy (SMA). SMA families talk about their hopes for the future. Find out more. Jason and Natalie Wylie from New Hampshire have two children, six-year-old…

Duchenne MD Drug Could Be Effective in Fighting SMA

https://www.youtube.com/watch?v=56YMP4-NFVw In this video from Wochit News, we find out a little information about a drug which has shown promise in mouse models in regressing spinal muscular atrophy (SMA). Clinical development for SMA treatments reviewed at an annual conference. Find out more.  The drug Pip6a-PMO, is designed for…

Cheerleading With SMA: Brittany’s Story

This video, from Spy Hop Productions shared in 2011, is all about Brittany Crockett, a 16-year-old high school student with type 2 spinal muscular atrophy (SMA). The documentary was made by Russell Williams and shines a positive light on what it’s like to live with a serious disability.

Muscle Owl Talks About SMA Research in AVXS-101

In this podcast episode of Muscle Owl Talks from Muscle Owl, host Peter Duffy chats with his co-host Michaela, a journalist from Northern Ireland who has spinal muscular atrophy (SMA). Doctors advise care for children with SMA Type 1 based on certain factors. Read more.  The two talk…