31 Days of SMA

31 days of SMA will run through the month of August for SMA awareness month. Everyday for the next 31 days a different member of the SMA community will share their story and unique perspective on life with SMA.

31 Days of SMA: We Will Never Be Alone in Our Disability

Photo courtesy of Noelle Hazel Day 18 of 31 This is Noelle Hazel’s (@noellegrace14) story: Hi! My name is Noelle, and I have SMA type 2. I have a brother who has the same disease type. Growing up with a sibling who is disabled has truly helped me…

31 Days of SMA: Representation Matters for Disabled People of Color

Photo courtesy of Sarbjot Kaur Day 17 of 31 This is Sarbjot Kaur’s story: Mehtab, whose name means moonlight, is our cheerful, adorable, and compassionate 4-year-old son. He loves playing with superheroes, dinosaurs, and Legos — his favorites are Black Panther, Batman, and T. rex. After numerous visits to…

31 Days of SMA: I Dreamed Big and SMA Became Small

Photo courtesy of Jacob Frost Day 15 of 31 This is Jacob Frost’s story: I have SMA type 3. I started using a wheelchair in elementary school. Thanks to supportive family and parents, I never believed my disease controlled my life or limited my potential. I dreamed of…

31 Days of SMA: Playing the Game of Life with a Disability

Photo courtesy of Joe Frost Day 14 of 31 This is Joe Frost’s story: Life with a disability is much akin to playing a game on insane mode, due to the lack of access to resources, services, and sites. Yet, for all the challenges, there are a few benefits.

31 Days of SMA: Creating Art Has Expanded My World

Photo courtesy of Pia Noi Schmid Day 13 of 31 This is Pia Noi Schmid’s (@pianschmid) story: I’m Pia Noi Schmid. “Noi” is my middle name — it means “little” in Thai. Cute, isn’t it? When I was 2 years old, I was diagnosed with SMA type 2.

31 Days of SMA: Note to My Younger Self? Don’t Hide Who You Are

Photo courtesy of Tristram Peters Day 12 of 31 This is Tristram Peters’ (@tristrampeters) story: When I was younger, I tried to hide my disability. I’d push myself to do everything my peers did, to show my disability didn’t matter. I’d even choose not to wear my tray/table…

31 Days of SMA: Singing Is My Great Passion and Therapy

Photo courtesy of Beth Whitby Day 11 of 31 This is Beth Whitby’s (@rolling_in_vintage) story: My name is Beth Whitby, I am 35 years old, and I have SMA type 2. I live in the U.K. with my husband and daughter. I have always believed and been taught…