31 Days of SMA

31 days of SMA will run through the month of August for SMA awareness month. Everyday for the next 31 days a different member of the SMA community will share their story and unique perspective on life with SMA.

31 Days of SMA: I Realized My Goals with Perseverance

Photo courtesy of John Jones II Day 6 of 31 This is John Jones II’s story: I was diagnosed with SMA at a very young age, making it a part of my life since before my recollection. That is a blessing really, to not have to navigate life that…

31 Days of SMA: My Life’s Work Is Advocating for Others

Photo courtesy of Sarah Cheung Day 5 of 31 This is Sarah Cheung’s (@sarahpcheung) story: From a young age, I wanted to help others. I was crushed when I realized I could not become a nurse due to my physical limitations (I have SMA type 1). Given my…

31 Days of SMA: I Write to Offer a Unique Perspective

Photo courtesy of Chaz Hayden Day 4 of 31 This is Chaz Hayden’s (@thechazhayden) story: Hey, friends! My name is Chaz, I’m 25 years old, and I have SMA type 1. I’m a soon-to-be-published author with my debut novel, The First Thing About You, releasing in fall…

31 Days of SMA: The Pandemic Gave Me Time to Rest

Photo courtesy of Ainaa Farhanah Amali Day 3 of 31 This is Ainaa Farhanah Amali’s (@ainaafrhanah) story: “Sweet, sour, salty, mixed” — that’s how I describe Year 2 of the COVID-19 pandemic, which of course has not ended yet. Last year, when the first cases were announced, many…

31 Days of SMA: My Marriage Makes Good Things Happen

Photo courtesy of Rachel Stewart Day 2 of 31 This is Rachel Stewart’s story: Growing up, I didn’t have any role models with my disability, let alone know someone with SMA who was married, or in a queer relationship. And I certainly didn’t see any representation on TV or…

31 Days of SMA: Being an Entrepreneur Makes Me Feel Seen

Photo courtesy of Alvaro Cheherlian Day 1 of 31 This is Alvaro Cheherlian’s (@_hotwheelz) story: Being an entrepreneur is hard. Being an entrepreneur with SMA adds challenges that make it even harder, but I didn’t let that stop me. My name is Alvaro Cheherlian, I have type…

Coming Soon: 31 Days of SMA

SMA News Today’s 31 Days of SMA campaign will publish one story per day from someone who has been affected by the disease for SMA Awareness Month in August. Stay tuned for the first story in the series starting on Aug. 1, and follow us on Facebook and Instagram for…