31 Days of SMA

31 days of SMA will run through the month of August for SMA awareness month. Everyday for the next 31 days a different member of the SMA community will share their story and unique perspective on life with SMA.

August 31, 2019

31 Days of SMA: Magic Wheelchair

31 Days of SMA

View this post on Instagram Day 31 of 31 Days of SMA⁣⠀ Topic: Magic Wheelchair ⁣⠀ ⁣⠀ This is @christinegetman story:⁣⠀ ⁣⠀ Feeling seen and heard for the right ... Read more

August 30, 2019

31 Days of SMA: Making Travel Accessible

31 Days of SMA

View this post on Instagram Day 29 of 31 Days of SMA⁣⠀ Topic: Making Travel Accessible⁣⠀ ⁣⠀ This is @srin86 story ⁣⠀ ⁣⠀ As a child, I didn’t get ... Read more

August 29, 2019

31 Days of SMA: Service Dogs

31 Days of SMA

View this post on Instagram Day 29 of 31 Days of SMA⁣⁣⁣⠀ Topic: Service Dogs⁣⁣⁣⠀ ⁣⁣⁣⠀ This is @savannahbedenbaugh⁣⁣⁣⠀ ⁣⁣⁣⠀ Luna is my heart beat at my feet.⁣⁣⁣⠀ ⁣⁣⁣⠀ ... Read more

August 28, 2019August 28, 2019

31 Days of SMA: Awareness and Advocacy

31 Days of SMA

View this post on Instagram Day 28 of 31 Days of SMA⁣⠀ Topic: Raising Awareness & Community⁣⠀ ⠀ This is @schribs18 story:⁣⠀ ⠀ Raising awareness about SMA is critical ... Read more

August 27, 2019

31 Days of SMA: Spinraza

31 Days of SMA

View this post on Instagram Day 27 of 31 Days of SMA ⁣⠀ Topic: Spinraza ⁣⠀ ⁣⠀ This is @armsforasher story:⁣⠀ ⁣⠀ Asher was diagnosed with Spinal Muscular Atrophy ... Read more

August 26, 2019

31 Days of SMA: Intersectionality and SMA

31 Days of SMA

View this post on Instagram Day 26 of 31 Days of SMA⠀ Topic: Disability and Intersectionality⠀ ⠀ This is @htrevin2 story: ⠀ ⁣⠀ Having a disability doesn’t define who ... Read more

August 25, 2019

31 Days of SMA: Mental Health and SMA

31 Days of SMA

View this post on Instagram Day 25 of 31 Days of SMA⁣⁣⁣ Topic: Mental Health⁣⁣⁣ ⁣⁣⁣ This is Doug’s Story⁣⁣⁣ ⁣⁣⁣ During an adult workshop at this year’s CureSMA ... Read more

August 24, 2019

31 Days of SMA: The Things We Don’t Take For Granted

31 Days of SMA

View this post on Instagram Day 24 of 31 Days of SMA⁣⠀ Topic: The Things We Don’t Take for Granted⁣⠀ ⁣⠀ This is @stylesuitemc story⁣⠀ ⁣⠀ Yesterday I picked ... Read more

August 23, 2019

31 Days of SMA: When Two Siblings Have SMA

31 Days of SMA

View this post on Instagram Day 23 of 31 Days of SMA⁣⠀ Topic: Siblings with SMA⁣⠀ ⁣⠀ This is Natalie’s story! ⁣⠀ In order for someone to have SMA, ... Read more

August 22, 2019

31 Days of SMA: An Inter-abled Couple’s Love Story

31 Days of SMA

View this post on Instagram Day 22 of 31 Days of SMA⁣⠀⁣⁣⁣⁣ Topic: An Inter-abled Couple’s Story ⁣⠀⁣⁣⁣⁣ ⁣⁣⁣⁣⁣ This is @shaneburcaw and @hannahayl story:⁣⁣⁣⁣ ⁣⁣⁣⁣ We are Shane ... Read more

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