31 Days of SMA

31 days of SMA will run through the month of August for SMA awareness month. Everyday for the next 31 days a different member of the SMA community will share their story and unique perspective on life with SMA.

31 Days of SMA: Why We Will Never Give Up

Photo courtesy of Tyler and Dara Bailey Day 30 of 31 This is Tyler and Dara Bailey’s story: My wife, Dara, has never viewed her life with SMA as being different than the lives of people without it. Growing up, she had goals of going to college, having…

31 Days of SMA: Confidence Is Key to Living With SMA

Photo courtesy of Maxwell McKnight Day 27 of 31 This is Maxwell McKnight’s (@maxwellmnight) story: Hello! My name is Maxwell. I’m 18 and have just finished my A levels. I have spinal muscular atrophy (SMA) type 2. This September, I begin my journey into higher education,…

31 Days of SMA: Valuable Lessons From a Self-advocate

Photo courtesy of Stephen Mikita Day 23 of 31 This is Stephen Mikita’s (@stevemikita) story: In 1968, I was 12 years old and had severe scoliosis. My doctors told me that my spine resembled the letter S, and I underwent spinal fusion. To say that…

31 Days of SMA: Her Condition Brought Us Closer

Logan Mundy and Arya Singh Day 22 of 31 This is Arya Singh and Logan Mundy’s story, as told by Logan: I was nervous for my first date with Arya. At the time, I had not even heard of spinal muscular atrophy (SMA) and knew nothing about disability or…