Columns

September 16, 2020September 14, 2020

Making Adjustments After Ella’s Visit to the Pulmonologist

Columns, Five Servings of Strength- a column by Michael Casten

Our daughter with SMA, Ella, had a doctor’s appointment with her pulmonologist recently. Her grandparents took her to the appointment because my wife, Lindsay, and I were working. Ella ... Read more

September 15, 2020September 11, 2020

Wearing My Vader Mask at Night

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

Every morning when I wake up, I feel like my nose took a beating the night before. Grogginess is one thing, but when you factor in a BiPAP machine, ... Read more

September 14, 2020September 10, 2020

I Think My Dreams Are Telling Me Something

Columns, The Wolf Finally Frees Itself - a column by Brianna Albers

The romantic in me wants to believe that dreams are portents, or windows to the psyche, or invaluable self-knowledge tools. But the therapist in me, who dabbled in clinical ... Read more

September 11, 2020September 9, 2020

Grasping the Reality of Evrysdi, a Breakthrough Treatment

Columns, From Where I Sit - a Column by Halsey Blocher

I have never been a morning person. My family, friends, co-workers, and pretty much anyone that has ever met me can tell you this is true. But on rare ... Read more

September 11, 2020September 9, 2020

The Message I Discovered in Celery Juice

Columns, Life, One Cup at a Time - a Column by Alyssa Silva

I admit that this column’s title is one I never thought I’d write. But alas, it is 2020, and most of this year has been a series of “never ... Read more

September 9, 2020September 8, 2020

Ella Enjoys Her First Days of Remote Learning

Columns, Five Servings of Strength- a column by Michael Casten

Our daughter Ella, who is 10, recently enjoyed the last few days of summer before school started again. During the last of her free time, she played outside, used ... Read more

September 8, 2020September 4, 2020

The Uncanny SMAers

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

Within the pages of the Marvel universe, one of the most iconic superhero teams is the “Uncanny X-Men.” There’s Cyclops with his optic blasts of energy, Marvel Girl with ... Read more

September 3, 2020September 3, 2020

A Season for Bumblebees and a Time for Warriors

A Wildflower in the Wheelderness - a Column by Katie Napiwocki, Columns

It’s late August.  The songs written by crickets in May have been arranged into full summer soundtracks, playing on loops of background music from dawn to dusk and moonrise ... Read more

September 2, 2020August 31, 2020

Ella Learns to Grow Up in a Complicated World

Columns, Five Servings of Strength- a column by Michael Casten

My daughter with SMA, Ella, has a knack for making friends. She naturally draws people to her and always finds the good in them. Last week, Ella’s older brother, ... Read more

September 1, 2020August 28, 2020

An Update on My Digestive Dilemma

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

A few months ago, I wrote about my ongoing stomach issues and the impact this was having on my daily life. Despite the subject matter, I somehow managed to ... Read more