Columns

April 15, 2019April 12, 2019

A Wildflower in the ‘Wheelderness’

A Wildflower in the Wheelderness - a Column by Katie Napiwocki, Columns

We are all affected by changes that call for us to acclimate to the seasons of our lives. Year after year, a wildflower finds its place under the sun. Spry ... Read more

April 15, 2019April 11, 2019

Fumbling Through the Dark: Navigating Adulthood with SMA

Columns, The Wolf Finally Frees Itself - a column by Brianna Albers

I was recently asked about resources in the SMA community — what’s available, but also what’s missing and what we would most benefit from. Before I started this column, ... Read more

April 12, 2019April 18, 2019

My Brother’s Earliest Memory of SMA Crushed Me

Columns, Life, One Cup at a Time - a Column by Alyssa Silva

I recently asked my brother, Adam, what his earliest memories of SMA are. At the time of my diagnosis, he was only 2, but his sharp memory has served ... Read more

April 11, 2019April 18, 2019

Striving for Contentment Amid Monotony

Columns, Refined By Fire - a Column by Ryan Berhar

New life experiences are welcomed when you’re a columnist. I’ve already written about notable stories from my past, and I generally don’t enjoy sharing my two cents on current ... Read more

April 10, 2019April 8, 2019

Ella Gets a New Therapist

Columns, Five Servings of Strength- a column by Michael Casten

Ella has been in therapy since before the day of her diagnosis with SMA. We knew she was late meeting many milestones, so we went to Early Intervention and ... Read more

April 9, 2019April 8, 2019

Adapting to Change Creatively

Columns, The Mermaid Chronic(les) - a Column by Kala Godin

Spinal muscular atrophy (SMA) can cause a lot of things, including muscle weakness, fatigue, and pain. It’s different for everyone. It also changes. One of the best side effects of ... Read more

April 9, 2019April 5, 2019

Finding Comfort in the Absurd

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

Between frequent migraines, sleep deprivation, losing significant strength in my arm and upper body, and the universal growing pains of being a teenager, my high school experience came with ... Read more

April 8, 2019April 4, 2019

Crossing Items Off My Bucket List: My New Tattoo

Columns, The Wolf Finally Frees Itself - a column by Brianna Albers

I finally got a tattoo. It may not seem like that big of a deal; people get tattoos all the time, sometimes they decide to get inked on a ... Read more

April 5, 2019April 3, 2019

Instagram Gem Redefines What Rest Means to Me

Columns, Life, One Cup at a Time - a Column by Alyssa Silva

Do you ever hop on social media and come across a post you feel was written for you, and only you? I know social media sometimes gets a bad ... Read more

April 3, 2019April 1, 2019

Ella Has a Play Date with Her Friend with SMA

Columns, Five Servings of Strength- a column by Michael Casten

Play dates come and go for Ella, just as for any other 8-year-old. She usually has her friends come over to our house because of her wheelchair. The kids ... Read more