Yet another insurance obstacle on my journey with Evrysdi

Note: This column describes the author’s own experiences with Evrysdi. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. I was expecting my insurance to turn up their nose at renewing my Evrysdi (risdiplam) prescription to treat my SMA.

Living with SMA makes me feel like an outsider

When I was in middle school, I became acquainted with Ponyboy, Sodapop, Johnny Cade, and the other “Greaser” boys from the pages of “The Outsiders.” Since its publication in 1967, S.E. Hinton’s seminal novel has continued to resonate with generations of teenagers and young adults from all walks…