Columns

Spending Time Alone Is Part of Living With SMA

The other day, I had my annual evaluation with a nurse to make sure I’m still disabled. This is one of the things that those of us who use government services for caregivers just have to do. It’s no secret that having a disability is a full-time occupation. Fortunately,…

This Is What Happens When Your Caregiver Gets COVID-19

When it comes to COVID-19, I’ve been pretty darn lucky. I can count on one hand the number of people I know who haven’t gotten COVID-19 — myself among them. Somehow, miraculously, I’ve managed to avoid the plague. I could attribute my health to literal years of quarantine, but the…

I’m Savoring Where I’m at in Life With SMA

Late last month, I posted a Reel for Disability Pride Month about comparison. I’ve written previously about jealousy and the dangers of comparing yourself with others, especially when you’re living with a chronic illness like SMA. You lose perspective. You start to blame yourself for things that are…

Happy (School) Days Are (Hopefully) Here Again!

Lights! Camera! Action! My family’s goings-on might make good fodder for a reality TV show. It’s been a memorable year so far, including my mother’s declining health and death in February; a collapsed ceiling and water damage two months later in what…