Columns

Feeling angry is an inherent part of living with SMA

A few weeks ago, my co-workers and I had a candid discussion about the things that tick us off. I work with a large team of patient and caregiver columnists from this site’s parent company, and we share many similar experiences and mindsets. Our monthly community calls over Zoom…

A tribute to the scribes who provided me writing assistance

I’ve written a lot about the support I’ve received from nurses and others. Although I always recognize the people in my life one way or another, I have yet to celebrate plenty of people, both medical professionals and nonmedical ones, through my columns. Everybody I know has gotten recognition…

Why we never take a single breath for granted

Respiratory ailments never bothered my husband, Randy, or me in Fort Worth, Texas, where we grew up. Columbia, South Carolina, our destination in 1985, was wretchedly muggy but didn’t prompt any allergy issues, either. In the early 1990s, we moved to Lenoir, North Carolina, where furniture factories thrived. That would’ve…

Being resilient: My journey of hope and triumph

My medical journey began with challenges but has evolved into a story of resilience and hope. Born on a sweltering August day in New York, I arrived as a gift to my mother, resembling her in several ways, including as a fellow Leo. The first six months of my life…

Could I have ADHD in addition to SMA?

“Sherry, did you forget about your evening medication yesterday?” my caregiver asked as she held up a plastic bag with a vitamin pill and painkillers. It was Feb. 17, the day after I attended an Ed Sheeran concert with my brother Gabriel. In response, my faced looked like that…