Columns

Some Special Signs Appear at the Perfect Time

The topics in this column tie in somehow to the death of our baby Jeffrey, as that is our connection to SMA. I’d like this column to provide even a spark of hope to others finding themselves in devastating circumstances. Consequently, I’ve purposely tried to gravitate toward a sense…

The Human Side of the Internet

“The internet is a well of humanity if you dig past the surface of it.” Comedian, actor, and filmmaker Bo Burnham said this in 2019 during a writers panel hosted by The Hollywood Reporter. Burnham got his start making YouTube videos in the early 2000s, back when the…

NaNoWriMo 2021: To Write or to Rest?

Hear that? It’s the sound of writers across the world readying to drive ourselves crazy in November for National Novel Writing Month, aka NaNoWriMo. We’ve got our blankets, a mug of our chosen caffeinated beverage, and snacks, and will be devolving into decrepit hermits as we attempt to achieve…

Reflecting on 2 Years of SMA My Way

It’s strange to think that a little over two years ago, I witnessed — and participated in — the conception of SMA My Way, a patient-focused community sponsored by the biotech company Genentech to support all of those affected by SMA. A lot has changed since then. I graduated…

When Dentists Are More Magical Than the Tooth Fairy

At every briefing before their shift, the nurses at my local children’s hospital would glance at me with amusement. As a child, I was often in the hospital for respiratory issues, and I had acquired a reputation. Not for my SMA, mind you, but for the one request I…