Columns

Rest, Recuperate, and Move Forward

Some of you may know that a year or so ago I founded Monstering, a magazine for disabled women and non-binary people. It started with the desire to create and produce a small, handmade zine. I’d always…

What You Can Learn Living in the Eye of the Storm

Did you know that when buffalo sense a storm coming, they run into it? I recently took a writing course, and the instructor shared this fascinating tidbit with us all. Most animals and humans alike seek shelter when we feel and see a storm brewing in the distance. Lightning strikes,…

Someday

“I’m sorry you have SMA,” Lindsay said to Ella. “Me too,” I echoed. Ella’s head moved to the side a bit as she looked at us and said, “I know.” Ella is becoming increasingly frustrated with…

Why You Should Embrace Your Struggles

In promising to be as open and honest with you at all times, I must preface this column by telling you I find myself in a season of struggle right now. Life as I know it is messy. It’s chaotic and out of balance and, at times, downright ugly. A…

The Freedom of Water

Bathing suits, sunscreen, towels, and water. The key ingredients for some summertime fun. Almost all kids love the water and Ella’s no different. We all know the feeling of floating, yet for Ella it represents a sense of freedom —…

On Being Approved for Spinraza

Last week I wrote about the different perspectives within the SMA community toward Spinraza treatment, with a brief summary of where I stood on the issue. As it turns out, the day after that column, my family and I found out…

The Pros and Cons of Traveling in a Wheelchair

I don’t know about you, but this time of the year always has me daydreaming of some sort of tropical getaway complete with life-changing excursions and the ability to immerse oneself in new cultures and traditions. At heart, I’m consumed by wanderlust. I love seeking new adventures and exploring all…