Second in a series. Read part one. This week, I sought advice from my aunt, Heidi McLaughlin, because she is a thoughtful, wise person. Like me, she is a writer. RB: If I didn’t have SMA and you could only give me one piece of advice about…
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It takes a family to navigate SMA. All five of us play a role in helping the household run smoothly. Mostly, however, the final responsibility lies with the parents. Ava and Henry are 11 and 9, respectively. Ella is 8. When one of them…
Across social media platforms right now, there’s a trend where people post pictures of themselves from 10 years ago next to current ones. The idea is to see how much people have changed over a decade and to laugh at embarrassing old images. It’s been entertaining,…
I’ve mentioned a couple of times that I don’t think I could live in the middle of nowhere. My parents want nothing more than to raise a few goats in rural Wisconsin, where they recently bought their “forever home,” a small farmhouse with decent acreage. I, however, would…
Welcome to Life with Vertigo
Hello. My name is Alyssa Silva, and on Jan. 7, I failed my vertigo test. Again. For the sixth or seventh time. Here’s a little useless fact about me: I’m a terrible test taker. In college, my final grades were saved by papers and projects because I always…
Free Advice Worth Paying For
I go to my family and friends for advice before anyone else. They’ve always given me tremendous input, but how is that affected by SMA, if at all? In the following interview, the first in a series, I’ll explore how SMA impacts the way people perceive me, as well as…
Technology is a wonderful thing. It’s something that is a part of all of our lives and can have tremendous benefits. Ella has her own iPad and spends time playing games, looking up videos of things she enjoys learning about, and texting us…
“Well, I certainly hope this little incident hasn’t put you off flying, miss,” says Christopher Reeve in the 1978 “Superman” film. “Statistically speaking, of course, it’s still the safest way to travel.” Well, if you’re Lois Lane and the Man of Steel comes to your…
A Surprising Start to 2019
Professional writing has always been a bit of a dream job. As a college freshman, I realized that my idea of writing didn’t exactly coincide with academic writing, which had me taking juvenile literature classes and, the bane of my existence in 2013, British literature courses.
Last week, I explained why I’m ditching the “new year, new you” mantra. Today, I’m keeping the conversation going by discussing my alternative to New Year’s resolutions. I’ve never been the type of person to set resolutions, and that’s for one simple reason: Life with SMA can…
Recent Posts
- What the Patriots’ playoff mantra taught me about life with SMA
- Early C-section helped baby with SMA begin her treatment right away
- SMA effects on development of nervous system worse than thought: Study
- I’m coming up with new ways to manage my pain without complaining
- Higher glial protein levels linked to better response to Spinraza in SMA
