Columns

Fall slips away softly as the brilliant colors of fallen leaves let go of their color and begin to dry up, preparing for decomposition. The time comes when all leaves must be lifted from the grass and placed in the leaf piles we so…

We’ve all heard the saying that PT is short for “physical torture,” and for the longest time I clung to that notion and refused to go. I did physical therapy when I was in preschool and early elementary school, but all throughout middle and high school I…

Cold winds are beginning to blow the leaves off of the trees. A circus of colors swirl in the air, never resting on the ground. Winter is on its way. Getting Ella ready to leave the house during the summer and spring…

A few days ago, I found myself strapped to an operating table while a radiologist injected a needle into the side of my neck. From there, I felt a tingling sensation in my body as a specialized spinal fluid flowed throughout my insides. All the while a…

I’ve been having a lot of headaches lately and, naturally,  my anxiety had me convinced I was going to die of a brain tumor. I knew, of course, how improbable it was. Every article I read — and I actually read quite a few —…

Well, friends, today’s column is going to be unlike what you read here most in my little corner of the internet. That’s because this column is brought to you by endless fluids, antibiotics, steroids, and a nasty respiratory infection that is most likely walking pneumonia. Ah, yes,…

The other night, I was out at Barnes & Noble with my dad. As we went to grab a table in the coffee shop area, I ran into an old friend and spent a few minutes talking with him and his friend over by one of the store’s…

A year or so ago, I came across a zine on Tumblr that was all about being “raised by the internet.” It was an interesting, enjoyable read, so naturally, I reblogged it, only to lose the original post in one of many archive cleanings. But…

Over the years, we’ve trained a few people on how to care for Ella. We have to show them how to stop and start her feeding pump, disconnect and connect the feeding tube to her G-tube button, lift her from her chair, take her…

November is a pretty jam-packed month for me. I’m working on a book project for the annual NaNoWriMo contest, juggling two separate podcasts, getting ready for the North Carolina Comicon. And on top of all that, I start my Spinraza injections a week from…