Columns

It Gets Better

I don’t know about you, but it’s getting harder and harder to keep my head above water these days. Part of it is school and part of it is depression, but most of it is just … life. There’s always something bad going on. Another…

My Wheelchair Is Dead. Now What?

My wheelchair has been my ultimate sidekick since I was a curly-headed toddler, and just like any other great sidekick, I rely on it for pretty much every aspect of life. Without my wheelchair, I would be helpless, confined and literally stuck. As the only source of independent…

Answering Ella’s Toughest Questions

Seven-year-old’s question everything; it’s part of how they learn about the world. Ella is no different. She questions us about many things. Of course, in the heat of frustration or while being reflective on any given situation, the questions revolve around SMA. Ella…

Making SMA Lives Easier, One Echo Dot at a Time

A few weeks ago, I wrote about how my Echo Show from Amazon Alexa has significantly increased my independence, particularly when I’m at home. Recently, my editors here at SMA News Today contacted me about several Echo Dot devices they had to give away…

I’m Not Normal, and That’s OK

I always get something out of my therapy sessions. Sometimes it’s a word or a phrase. I’ll never forget when my therapist told me that, even in the midst of an attack, I won’t be anxious forever. I don’t struggle as much with anxiety…

Promise You Won’t Quit, OK?

As much as I don’t like to admit it, sometimes life can be brutally unfair. I’m even hesitant to type these words because it seems as though everyone is always so focused on creating and chasing the idea of a perfect life. No one wants to be metaphorically…