Columns

The gifts a movie legend left me

While you might recognize Val Kilmer from iconic films like “Top Gun” or “Batman Forever,” the first of his movies I saw was probably one of my mom’s favorites, “The Saint.” It’s the story of an orphaned con artist who, stripped of his own identity in…

How being prepared became more than a Girl Scout motto

Starting with Brownies in second grade, my stint in the Girl Scouts lasted five years. The Girl Scouts’ motto is “Be prepared.” As the firstborn, Taurus child of teacher parents, that came easy for me. Growing up, I tended to be generally organized and responsible — a dream…

Meet SMA News Today’s newest forum moderator!

At the time I applied to be a columnist for SMA News Today, I knew just one piece of career advice: what you do in your personal life matters — especially if you’re a volunteer for anything. I was 19 when I received that advice. I had no formal…

How an airway collapse brought … relief?

Author’s note: I wrote most of this column on my phone while getting an atypical mole removed. If you wondered why I disappeared from social media, it’s because I’ve been busy crossing things off my medical bucket list, like getting shot up with lidocaine and watching a surgeon suture my…

Defining ‘good health’ on my own terms

Last December, my brother kept badgering me about what I wanted for Christmas. I was so sick with a respiratory infection at the time that my only focus was on getting better, not a present. Fighting any kind of respiratory illness can be life-threatening for someone living with…

Thinking outside the box is necessary in life with SMA

Years ago, I taught kindergarten at a self-contained school for students with orthopedic and other disabilities. My charges were animated, and my assistant was delightful. At the end of my fifth year, my students were all mainstreamed to regular elementary schools, leaving me classless until days before the following year…