Columns

It’s officially fall in the U.S.! The weather here in the North Carolina mountains has been stupendous. I could almost hear our assorted fans breathe a collective sigh of relief when we finally turned them off at times and even closed some windows at night to keep from rousing the…

“People think bisexuals stereotypically can’t decide on which gender we want to have sex with, when the truth is, we can’t decide on anything,” someone in a group chat once joked. I laughed far longer than perhaps was appropriate, nodding along at the truth of the statement, at least in…

Note: This column contains spoilers for the musical “Wicked.”  A few weeks ago, I saw the award-winning musical “Wicked” with my sister-in-law. I saw the show back in 2012 with my parents in New York City, and I jumped at the chance to buy tickets when I saw…

I’d just survived a car accident in Phoenix while road tripping with my parents from our home in Minnesota to the 2022 Cure SMA conference in Anaheim, California. (Long story short, my dad ran over a particularly nasty curb in a gas station parking lot. Any other vehicle…

In the SMA community, we expect to grieve the loss of our abilities, given the nature of this disease. But for me, grief often feels like an ambush. In my three decades of life, I’ve lost many abilities. And every ability lost comes with its own grieving period.

So much of life is about gaining maturity through our experiences. Sometimes we go through events similar to ones we’ve experienced before, but we now understand them from a whole different perspective. A few months ago, I shared here that my back was to the wall. I need night care…

I spent a small fortune on cute books for the kindergarteners I taught at Brockman School, then a self-contained public school in Columbia, South Carolina. The students, many with severe disabilities, delighted in hearing the animated voices of the stories I read to them. My own children, Matthew and…

For months, I waited in anticipation of July 22. I was going to be on a promotional panel for “Not Without Us: Perspectives on Disability and Inclusion in Singapore,” a book I contributed a chapter to last year. Before I’d even signed the contract, friends and family asked me…

In every popular sitcom, there’s always a central setting for the characters to congregate. For some it’s a workplace, such as the Dunder Mifflin branch in “The Office” or the government building in “Parks and Recreation.” Other shows feature a shared living space, such as the geek-decorated apartment in “The…

When I was a kid, I spent many mornings and afternoons sitting on a padded blue bench with a table in front of me. I spent this time playing with my action figures, drawing, and immersing myself in Saturday morning cartoons. Kids, there was a time before streaming services when…