Columns

What if I Could Take a Vacation From SMA?

“Yesterday, All my troubles seemed so far away, Now it looks as though they’re here to stay, Oh, I believe in yesterday.” Among the countless hits by the Beatles, “Yesterday,” released in 1965, has stood the test of time as one of the most revered and influential songs in history.

Memories of the Past, and a Miracle in the Present

The Christmas spirit eluded me in 1997. Our baby Jeffrey, diagnosed with SMA that summer, had snagged his wings that November. Needing to find something positive, I focused on why I should be thankful. Jeffrey was in heaven, free from the ravages of SMA. I knew that, and…

With SMA, Would My Life Be Better in the US?

My parents used to joke that I should’ve been born an American. As a kid, I loved burgers and fries, I was enamored with Disney movies and country music, and I spoke “proper” English better than anyone else in my family. That’s not to say I didn’t love it here…