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The Best Unorthodox Advice From My Doctor

When you’re living with a complicated disease such as SMA, it’s half the battle to have a knowledgeable and trustworthy medical team helping to manage everything. I’ve always been fortunate in that respect. I know how difficult it is to build a solid medical team, but I’ve somehow collected…

The Importance of Paradises in a World on Fire

A single lyric keeps ringing in my head from Fletcher’s latest single, “Her Body Is Bible.” It goes, “Hold on tight, when the world gets hard, this s**t’s like paradise.” The song appears pretty straightforward at first blush. The lyrics and the imagery are simple, attempting to reclaim religious…

Life Is Like a Box of Chocolates … and a Yo-yo

I’ve only seen snippets from the 1994 movie “Forrest Gump.” I know a couple of its famous lines, though: “Life is like a box of chocolates. You never know what you’re gonna get.” I love surprises, chocolate and otherwise! Usually. In the mid-1980s, my husband, Randy, and I…

I’m Convinced COVID-19 Vaccines (and My Mum) Saved My Life

When my little brother and I were barely out of our toddler years, there was one question I’d constantly hear other parents ask my mum: “Did your children get all their vaccination shots?” To which my mum would reply: “Yes. After their father refused to let Sherry receive the vaccination…