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Milestones Are Different With SMA

I woke up to a Facebook notification inviting me to a group for my high school reunion. It dawned on me that next year will mark a decade since I graduated. Factor in a pandemic, and it feels more like several decades since I crossed the stage in June 2012.

Our Lives Are Evidence

Every August, I sit across from a nurse and prove that I am, in fact, still disabled. Disclaimer: I completely understand why assessments are necessary. I’m the beneficiary of countless government programs, from Medicaid to much-needed support funds. I’m not just blessed, I’m privileged as all get-out. I dislike the…

What We Can Learn While Waiting for Coffee

Last week, my mom, brother, and I decided to grab coffee on the way home from picking up groceries. The Starbucks closest to our house has one of the only drive-thrus that can accommodate the towering height of my high-top wheelchair van. Our order was taking longer…

The Challenges of Making Friends as an Adult With SMA

Making friends as an adult is hard. At least, it always has been for me. After all, I’m an introvert. I like keeping to myself. But friendships are important to my emotional well-being, and I cherish them deeply. However, once I graduated from college and started working…

We Choose to Fight for the People Left Behind

Weeks ago, when my friend Sherry and I started brainstorming topics for Disability Pride and SMA Awareness Month, we talked about choice. Specifically the hypothetical kind. In an ideal world, with free healthcare and radical accessibility, would we choose to stay disabled? It’s a question I’ve asked myself numerous…