Back in 2019, I signed up for an online women’s health and rights course by women’s rights activist and Stanford teacher Anne Firth Murray. It was a spur-of-the-moment decision; I’m not even sure I was truly interested in it back then. While I considered myself a feminist, I was wary…
Columns
It all started so innocently. Let me start with a clarification: I did not fall prey to a multilevel marketing scheme. I will not barge into your DMs with “an opportunity” — or, in other words, a “proposal” — that will benefit the both of us. I’m not trying to…
Today I want to talk more about my outlook on life, as well as yours. Hopefully, nobody who regularly reads what I write ever comes away thinking that I have it all together. I will be working on my outlook and personal growth until the day I die. I hope…
The Art of Snagging Angel Wings
Is it possible that we might have a bit of input into how we snag our angel wings? It sort of seems like it. Near the end of my senior year of high school, my maternal grandfather underwent an experimental procedure to reduce tremors. It did not go well. During…
How would you expect someone with a disability to react upon reading an account of a nondisabled man essentially telling a disabled woman she shouldn’t exist? Would you expect them to react with despair? Fear? Rage? I reacted by laughing hysterically. The chronic pain and increasing fatigue caused by the…
Like most things when it comes to Sherry, it was a no-brainer. A few weeks ago, I woke to a string of messages in our shared Discord server. An SMA News Today columnist, she’d been asked to participate in this year’s Rare Disease Day (RDD) panel, organized by…
I Am Here, and That Is Enough
As I prepare to write my first column in over a month, a nasojejunal tube is pumping food into my small intestine, reminding me I’m not out of the woods yet with my health. My energy level feels nonexistent, and I fear that it may be my…
Bound for Glory? All Aboard!
As I last wrote, my 89-year-old mother was admitted to the hospital after testing positive for COVID-19. “Oh no,” you might think. “That doesn’t sound good.” You’re right, it doesn’t. My mother, however, had high hopes for COVID-19. *** Our third baby, Jeffrey, burst into our arms…
A friend and I were sitting in a dimly lit movie theater a few years ago when two guys in their 20s approached me. I couldn’t tell initially if I knew them, but after a closer look, I realized that neither was an acquaintance of mine. They each bore somber,…
For the first time as an adult, I’ve met the stranger within myself. I’ve been exploring the unknown caverns winding deep inside my heart, not from an underground entrance, but instead, closer to the clouds than I’ve been in a long while. My environment and scenery look…
Recent Posts
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- Motor unit changes track with SMA severity, new study shows
- SMA community honors legacy of disability rights activist Alice Wong
- Teamwork and faith helped my parents raise children with SMA
- SMA treatment Evrysdi shows multiple benefits for adults
