Columns

When I was diagnosed with SMA, my parents were confronted with a pivotal choice: stay in Singapore or move the three of us to the U.S., where they’d heard there might be an experimental gene therapy that could treat me. It’s a decision that would have altered the course of…

It’s not just the closeness, the sudden proximity to people other than my parents. It’s not just the dearth of mask mandates. (You’ll pry mine from my stone-cold, long-dead hands.) It’s not even the sense of possibility — for the first time in over a year, I can go places,…

As a tiny tot, I crawled everywhere. I was the daintiest crouched explorer my backyard habitat had ever known. Once I crawled, my family soon beckoned me to begin walking. That’s how the sequence of life works, after all.  When we’re given the breath of life, it comes with…

“It’s a dangerous business, Frodo, going out of your door. … You step into the Road, and if you don’t keep your feet, there is no knowing where you might be swept off to.” By now, my readers and editors are probably rolling their eyes at the absurd number of…

I’ll never forget March of last year when the pandemic began. Many of us didn’t realize how serious it was, and we didn’t know what to expect, how to handle it, or what we were in for in the months ahead. My family and I watched the news closely, read…

While life around here resembles a roller coaster most of the year, the frenzy ramps up in May as it always has. From my days of wrapping up classes as a student, to wrapping up IEPs as a teacher, to keeping up with end of school year activities…

One of my favorite films is “Rushmore,” a coming-of-age comedy from one of cinema’s most imaginative directors, Wes Anderson. “Rushmore” tells the story of quirky teenager Max Fischer, an ambitious playwright who prioritizes everything but his academics. He joins every…

A few days ago, I linked my friend Sherry to an article on spatial abolition and disability justice. I knew a few paragraphs into the article that I would be sending it to Sherry. Given her interest in disability justice and accessibility, it seemed like a match made…

Every sibling relationship is unique, but what happens when SMA gets thrown into the equation? I could tell you about its effect on my relationship with my brother, Lucas, from my own perspective, but today I want you to hear from someone else. In honor…

I sat on my outdoor patio, coffee cup in hand, breakfast before me, and eyes alive with wonder of where my beagle, Eva, might be. I scanned the feathered tips of rich green pines reaching into the morning skyline above me. I listened to barbershop quartets of dapper songbirds clustered…