A few days ago, I linked my friend Sherry to an article on spatial abolition and disability justice. I knew a few paragraphs into the article that I would be sending it to Sherry. Given her interest in disability justice and accessibility, it seemed like a match made…
Columns
Every sibling relationship is unique, but what happens when SMA gets thrown into the equation? I could tell you about its effect on my relationship with my brother, Lucas, from my own perspective, but today I want you to hear from someone else. In honor…
I sat on my outdoor patio, coffee cup in hand, breakfast before me, and eyes alive with wonder of where my beagle, Eva, might be. I scanned the feathered tips of rich green pines reaching into the morning skyline above me. I listened to barbershop quartets of dapper songbirds clustered…
I am giddy with excitement. Taylor Swift’s “Fearless” plays on my iPhone as I begin writing a column about that album and its effect on my life. I know exactly what I want to say, how its structure will…
Content warning: The following contains a mention of suicide. If you know me at all, you know that I love Target. I’m not proud of it. If anything, I’m this close to canceling my RedCard and Shipt membership. But I can’t deny my years-long obsession with the retail store identified…
As COVID-19 vaccinations continue here in the U.S., I’m noticing that more people are venturing back out into the world and returning to a “new normal.” While I’m glad to see that we’re taking some steps in the right direction, I’m not in a hurry to get back to my…
During the height of the pandemic last year, a steady influx of people often reached out to me to check on my health. It was quite admirable. Friends, family members, and even people I had lost touch with would call or text for status updates, and I truly felt more…
Have you ever noticed that people are similar to countries, and vice versa? Everyone has their own exports (products or services we produce) and imports (products or services we buy, such as food). Two or more individuals can become like allied nations when a friendship forms and they begin to…
My 3-year-old grandson, James, adores his MomMom (me!) and treats me like royalty. He gently places a pillow behind my back on the couch and insists on propping up the footrest before covering me with a blanket so I’ll be cozy. He makes sure I’m fed well and…
My life is a sitcom. Recently, I was chatting with my friend Young, a columnist for Charcot-Marie-Tooth News, about our writing processes. He was rather amazed when I told him that I rarely plan column topics. In my life, it’s never…
Recent Posts
- How Children’s Hospital Colorado uses gaming to support SMA care
- We need more research on reproductive health in women with SMA
- Developer tries again for US approval of SMA therapy apitegromab
- Collaboration makes the impossible possible after an air travel impasse
- FDA approves high-dose Spinraza regimen for new, existing SMA patients
