Columns

My Bout with Pneumonia Brings Back Ugly Memories

My nearly three-year streak of good health came to a screeching halt at the beginning of March. I guess you could say March Madness came a little early for me. I came down with a nasty virus that quickly turned into pneumonia. While I had pneumonia on roughly…

Ella Plans a Road Trip with Her Dad

The weather is starting to turn here in Chicago. Rain falls slowly, covering the grass, streets, and sidewalks. Warmer winds are blowing leaves left over from last fall. Spring has arrived. Our accessible van had a rough winter. In the frigid weather,…

SMA and Body Modifications: It’s My Choice

People often assume that disability prevents someone from being physically able to express themselves. Especially in the form of body modifications. They would be wrong. One of my favorite forms of artistic expression is body modifications, specifically tattoos. They’re my favorite! I started dyeing my hair in sixth grade. Since…

Ella Shows Empathy as She Encourages Her Friend

Ella has had several surgeries in the past seven years since her diagnosis of spinal muscular atrophy (SMA). Her first was for the placement of her G-tube. This device allows us to supplement Ella’s diet and administer her medications easily. Her second surgery was…

Welcome to ‘The Mermaid Chronic(les)’

Hello, everyone! My name is Kala, and I’d like to introduce you to the first installment of my column, “The Mermaid Chronic(les).” Mermaid stories have always been my favorite, whether they’re fairy tales or mythology. I love the wicked ones and the sweet ones. In almost every story, the mermaid…