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Ella Takes Another Trip to the Emergency Room

We rolled up to the emergency room for the second time this month. The first time, Ella had broken her left foot. Now we were there for the other foot. This particular afternoon, Ella had been playing with her brother, Henry, and his friends. She…

Spinraza Has Impacted My Life More Than I Thought

Lying on my couch one day in late August, I thought about how the previous weeks had been unexpectedly challenging. I was watching one of my favorite (albeit trashy) reality television shows. I’m not big into TV, so when I watch it for hours something is up. When my mother…

Ella Discovers a New Talent for Songwriting

Music helps us to express our feelings, dreams, and aspirations. Ella has been to several Young Naperville Singers rehearsals and is loving it more and more. She can’t wait to get there and doesn’t want to leave when the session is over. One evening, my…

I’m a Work in Progress, and That’s OK

A few weeks ago, someone posted a question in a Facebook group for people living with neuromuscular conditions. The question, composed of a few simple words, prompted me to stop and think. How’s your life going right now? A question like this should be…

Brockman Bears, Together Again

What seems a lifetime ago, my husband, Randy, and I decided to return to school for our teacher certifications. After quitting our joint job at a residential facility for at-risk teens, Randy went first. To pay the bills, I applied to be a substitute teacher. I requested…

Life Moves Forward Despite Setbacks

The old saying, “You don’t know what you have until you lose it,” rings true these days. We took our accessible van to Superior Van and Mobility in South Bend, Indiana, about two hours from our home. They diagnosed the problem with the ramp…