Columns

The Curveball, Part One: A Possibly Broken Leg

To say that SMA can throw a curveball at you at any given moment is like saying that the “Star Wars” prequels could’ve benefited from more rewrites. There are some things that just go without saying, and every person who has SMA knows how unpredictable and difficult this…

Eating a Monster Meal with Friends

Last night, I asked my dad what I should write about for my next column about life with spinal muscular atrophy (SMA). “Why you don’t write about the struggles you have with eating?” he suggested. I laughed. “No one wants…

Turning Improbabilities into Possibilities

I experimented with highlights in middle school. I wanted to get this professionally done, but my mother, who’s been dyeing her own hair for probably longer than I’ve been alive, insisted we use a box kit, like the kind you find at Target. It became a…