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Do you have to jump through hoops to access independent living programs?
Even though I try to paint a positive picture of life, living with a disability isn’t always sunshine and butterflies. It’s no secret that I take advantage of programs available to assist with living independently. Of course, these programs usually come with strings attached.
Because time is a precious commodity, I don’t like to waste it. In my most recent vlog I talk about some of the strings attached to a program I’m utilizing and why I feel it’s not the best use of my time.
Do you have to deal with silly nonsense to access programs? What kind of hoops have you had to jump through?
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2 Replies
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Those questions were absurd! I hope you don’t find out that it’s mandatory to fill it out. I have questionnaires I must fill out yearly for the state to approve my PCA hours, and some of the questions are ridiculous. Like, they ask me how many times I pee and poop a day. It’s strange.
I totally get what you’re saying though. Our time is so precious because our energy is so finite. Sadly I don’t think many people realize just how strategic we have to be about how we use our time and energy just to get through the day.
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I’ve got one that I’ll put up against anyone else… my CDAC case manger from years back was waaay over the top with details. She requested I tabulate the time it takes me to eat MINUS the time my care provider just sits there waiting for my next fork of food. Really???
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