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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 1 reply, 2 voices, and was last updated 1 year, 5 months ago by Noahoscar986.

  • Author
    • #11869

      There are three main symptoms of spinal muscular atrophy (SMA): poor muscle tone, breathing difficulties and curvature of the spine. The severity of these symptoms will depend upon the type of SMA the patient has: Type 1 presenting the most severe symptoms and Type 4 the least severe. Typically, Type 1 SMA is diagnosed in infants.

      Are you a new parent whose child may have or was recently diagnosed with SMA type 1? Be sure to read our resource page for SMA Type 1.

      Also, please feel free to register in this forum and introduce yourself to our support community. We look forward to getting to know you!

    • #17451

      I am really thankful to you that you give me such good info.

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