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    • #27877
      Alyssa Silva

      Living outside of a developed nation, Edmund feared that his son wouldn’t be able to have access to an SMA treatment. But, in the earlier days of the pandemic, his fears turned to triumph when his son became eligible for treatment. Edmund refers to this opportunity as “a second chance” and explains what it means for him and his family. He also shared his son’s response to getting a treatment which, I thought, was really sweet. You can read all about it here.

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