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    • #27808
      DeAnn R

      Our next story comes from the perspective of a parent.  Not only does it discuss the feelings behind getting that diagnosis, it talks about the disparity of accessing treatments in Canada.  It also points out the lack of representation of people of color with SMA.  Their four year old son, Mehtab, has a bright future ahead of him and if we all continue to advocate that future can be even brighter.  Read their entire story here.

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