• Spinraza (nusinersen)

  31 Days of SMA: Spinraza, Asher’s Story

  Posted by deann-r on August 29, 2019 at 9:37 am

  https://smanewstoday.com/2019/08/27/31-days-of-sma-spinraza/
  Have you been following the 31 Days of SMA?  I loved this one!  As an almost 40 year old with SMA I can only imagine what it’s like to get the SMA diagnosis for your child. Add on to that the urgency to get them help with a yet untested treatment. Nervewracking to say the least. I applaud Asher and his family for understanding the importance of their journey. Their decision helped lead to the first ever treatment for SMA.

  deann-r replied 4 years, 7 months ago 1 Member · 0 Replies

  • 31 days of SMA
  • Asher
  • SMA treatment
  • spinraza
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