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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 0 replies, 1 voice, and was last updated 11 months, 3 weeks ago by DeAnn R.

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      DeAnn R
      Keymaster

      31 Days of SMA: Spinraza


      Have you been following the 31 Days of SMA?  I loved this one!  As an almost 40 year old with SMA I can only imagine what it’s like to get the SMA diagnosis for your child. Add on to that the urgency to get them help with a yet untested treatment. Nervewracking to say the least. I applaud Asher and his family for understanding the importance of their journey. Their decision helped lead to the first ever treatment for SMA.

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