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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 0 replies, 1 voice, and was last updated 3 months, 2 weeks ago by DeAnn R.

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        DeAnn R
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        31 Days of SMA: Spinraza


        Have you been following the 31 Days of SMA?  I loved this one!  As an almost 40 year old with SMA I can only imagine what it’s like to get the SMA diagnosis for your child. Add on to that the urgency to get them help with a yet untested treatment. Nervewracking to say the least. I applaud Asher and his family for understanding the importance of their journey. Their decision helped lead to the first ever treatment for SMA.

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