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The importance of newborn screening for SMA

Rory and Carolyn met in seminary, fell in love, and got married. They decided to hold off on starting their own family while they settled into their first jobs in North Dakota. After a few years, they moved to Minnesota, where Rory accepted a job as a minister, and Carolyn enrolled in a hospital chaplain residency program. At the time, they did not know how important the decision to move would be for their future family. When they moved, neither North Dakota nor Minnesota had SMA on their newborn screening panel. It wasn’t until March 2018 that Minnesota adopted and implemented newborn screening for SMA, and then several months later, in 2018, Rory and Carolyn’s only son Edan was born.


This topic has 0 replies, 1 voice, and was last updated 2 years, 5 months ago by Kevin Schaefer.

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    • #11700
      Kevin Schaefer
      Keymaster

      Hi everyone. Since we’ve gained some new members recently, I just wanted to introduce myself here. My name is Kevin Schaefer, and I’m 24 with SMA Type II. I work here at BioNews Services, and part of my job is moderating the SMA forums.

      Please feel free to contact me with any questions you have about the forums. Also, suggestions for discussion topics are always welcome. Our goal is to make this a platform for sharing information, experiences and questions related to life with SMA. I look forward to hearing from you all.

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