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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”

This topic has 0 replies, 1 voice, and was last updated 1 year, 1 month ago by Kevin Schaefer.

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      Kevin Schaefer

      Good morning.

      We at SMA News Today (and our parent company BioNews Services) are interested in speaking with families, whose children have been treated with Zolgensma. We would love for anyone who meets this criteria to share their experiences and opinions with our readers. If you or anyone you know is open to this interview, please contact us at [email protected].

      For all of the latest news regarding Zolgensma, please follow our main website. Thank you, and we hope to hear from you all soon!




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