SMA News Forums Forums Treatments and Research Spinraza (nusinersen) Columnist Reflects on the Impact of Spinraza

  • Columnist Reflects on the Impact of Spinraza

    Posted by brianna-albers on September 23, 2019 at 7:00 am

    Happy Monday!

    In her latest column, Alyssa reflects on the impact of Spinraza. She’s grown used to the gains she’s seen, from improved lung function to an increase in stamina. However, her latest dose was delayed because of an insurance holdup. She noticed several changes in the weeks she was waiting for her dose, from fatigue to emotional exhaustion.

    The absence of Spinraza helped Alyssa realize just how much the medication was doing for her. The delay between doses can be frustrating, but the improvements she’s seen are well worth it. Alyssa is more determined than ever to fight against SMA through the use of Spinraza.

    If you’re currently taking Spinraza, what kind of changes have you noticed between doses?

    brianna-albers replied 4 years, 8 months ago 1 Member · 0 Replies
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