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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”

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    • #24192
      Alyssa Silva

      In a recent column, Michael Casten discusses his daughter’s fears about being bullied when she gets to junior high school. Ella (the daughter with SMA) is heading into 5th grade this fall but had recently watched a YouTube video about a person being bullied and started to worry about her own future experiences.

      Bullying is such an important conversation to have with your child, and my heart goes out to Ella. I never experienced bullying (at least to my knowledge) in school, but there were definitely students who were apprehensive to be around me. Heading into junior high, I had similar fears. But it was a much different time back then where I didn’t have to worry about cyber bullying or social media or even texting because none of it existed yet. Kids nowadays have a much different reality.

      Do you have advice on bullying for Ella and her parents? I’m sure others in this forum would benefit as well.

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